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Public 990 Summary

CARDIO-FACIO-CUTANEOUS INTERNATIONAL

EIN 161569293 · Latest tax year 2024 · Usable public filing summary

LARGO, FL · Education · cfcsyndrome.org

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CARDIO-FACIO-CUTANEOUS INTERNATIONAL has a public Form 990 profile, but an AlignMint donation portal is not live yet. Review the public filing signals and share the claim link with the nonprofit if the profile should be activated.

Program ratio

Not enough public data

Fundraising ratio

0%

Admin ratio

Not enough public data

Program ratio estimates the share of reported expenses used for programs. Fundraising ratio estimates fundraising expense share. Admin ratio estimates management and general expense share when the public fields reconcile.

View previous 990s on ProPublica

Public filing snapshot

Ratios use reported functional expenses when available and are only derived when the public fields reconcile with total expenses.

Total revenue$207,106
Contributions and grants$101,341
Program service revenue$58,064
Other revenue$35,514
Total expenses$401,040
Grants paid$0
Salaries and compensation$171,876
Program ratioNot reported
Fundraising ratio0%
Admin ratioNot reported
Total assets$344,835
Net assets$344,835
Total liabilities$0

Filing history

Recent prepared public snapshots appear here as the directory rollup processes more 990 filings. Use the ProPublica link for the full public filing archive when a prior year is not shown yet.

990 2024

Revenue: $207,106
Expenses: $401,040
Program ratio: Not reported

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Program ratio: Not enough public data. Fundraising ratio: 0%. Admin ratio: Not enough public data.

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Mission and programs

CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management webinars, and disseminate vital information - like peer-reviewed treatment guidelines - to diagnosed patients and caregivers. We improve access to experts in the management of CFC syndrome by hosting a biennial medical conference as well as at least one Rasopathy Clinic care event per year. Our patient families convene for support in multiple ways: through a Facebook support group, six to eight virtual support groups per month, and regional family meetups. Through our Medical Advisory Board, we strive to ensure that healthcare professionals have immediate access to the most current information, facilitatin

Public leadership

Public Form 990 officer rows; not a staff or contact directory.

Troy Greisen

Former Executive Director

5 hours/week · Reportable compensation: $70,833

Tuesdi Dyer

Executive Dir.

5 hours/week · Reportable compensation: $19,624

Alexis Nash

President

5 hours/week · Reportable compensation: $0

Jeff Kohler

Past President

5 hours/week · Reportable compensation: $0

Richard Boyce

Board Member

5 hours/week · Reportable compensation: $0

Darin Iacobelli

Treasurer

5 hours/week · Reportable compensation: $0

Public filing sources

View previous 990s and source filings on ProPublica
irs_990_cache

Tax year 2024 · Source 202543219349307124 · Parser opportunity-intelligence-financials-v1

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  • Public data coverage: Usable public filing summary.
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